The Clinical Genome Resource (ClinGen)
GenomeConnect is open to adults (over age 18) and children (under age 18 who have the consent of a parent or legal guardian) who have had genetic testing and/or have been diagnosed with a genetic condition.
Questions about privacy?
The person entering the data
Who will have access to my information?
Only trained registry managers will have access to your contact information. Your identity, such as your name or email address, is NEVER shared unless you request that it be shared.
How will my identity be protected?
All personal identifiers, such as your name or email address, are removed before your information is shared unless you ask us to disclose your contact information.
Who should I contact if I have any questions?
If you have questions that are not answered on this page, please Contact Us.